They dont understand-a poem about chronic illness

This is a poem I wrote a while ago when I was having a really big flare. It was at a time when I didn’t talk much about my disease. I felt ashamed because most people didn’t understand how I could look so healthy and yet feel so horrible. I decided to share it will all spoonies in the hopes that it might touch your soul in some way or another.

I got sand between my joints, 
daggers in my shoulder blades,
and calves that feel like burning coal.

I got a goodnight's rest,
yet I still feel like I ran a marathon,
no amount of napping will help.

I hear how lucky I am to be young,
but this body feel so old,
They don't understand because it's invisible.

I can be skipping today, running tomorrow,
and in an instant be asking,
where have all my spoons gone?

Hot one minute, cold the next,
no it's not this and this I got it checked,
I promise, I'll be fine.

When people think it's in your head,
You're being dramatic you're a fake,
They don't understand because it's invisible.

I can't do today, what I did yesterday,
Sometimes I feel like such a burden,
I forgot who I was for so long.

It's exhausting to look normal,
when your normal feels wrong,
but I remember I need to be strong.

I say I'm fine, to ease their mind,
this disease I'm fighting is hard,
it's ok they don't understand because it's invisible.


https://quotesgram.com/bill-laswell-quotes/
This picture was taken from the site listed above. It is not mine.

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