Chronic Fatigue

Hello Spoonies, Today, I wanted to talk about chronic fatigue. What is chronic fatigue? Ever had what you thought was a great night sleep but have woken up still feeling exhausted or worse? Yes. Now, imagine feeling like that day after. Imagine having to decided if you should shower standing up, sitting down or atContinue reading “Chronic Fatigue”

Goodbye 2019

Hello Spoonies, As another year comes to end we start taking a look back at it. We reminisce about the good and the bad. We think about what we could’ve, should’ve done. Some of us think it was the best year yet and some of us think it’s the worst. I personally try to lookContinue reading “Goodbye 2019”

Allodynia- Skin sensitivity

Hello Spoonies, As I lay in bed I can feel the pressure on my skin. Every fleck of floating dust particles in the room that you see dancing in the sunlight. They touch my skin and make it burn. I feel like a heavy blanket has been laid over me covered in thousands of mitesContinue reading “Allodynia- Skin sensitivity”

2020 Goals

Hello Spoonies, I normally set my goals for September. I find with the boys it’s the easiest time for me to get into a new routine. The kids are going back to school and are no longer on a summer schedule. This year however, I am having a huge change in my life that willContinue reading “2020 Goals”

Setting Goals with an invisible illness

Hello spoonies, Having goals with a chronic illness sometimes seems really daunting. We are often found wondering if we will even be able to meet the goals we set out. It’s a scary thing because we often assume if we set goals we need to achieve them and it should be fairly easy. I alsoContinue reading “Setting Goals with an invisible illness”

They dont understand-a poem about chronic illness

This is a poem I wrote a while ago when I was having a really big flare. It was at a time when I didn’t talk much about my disease. I felt ashamed because most people didn’t understand how I could look so healthy and yet feel so horrible. I decided to share it willContinue reading “They dont understand-a poem about chronic illness”

Invisible Illness

Hello spoonies, My next few post will be about the basic of our diseases. I not only hope to reach to spoonies that know what all of this is about, but to people who are new to these unknown disease or just want to learn more. When I first heard the term fibromyalgia and spondyloseContinue reading “Invisible Illness”