Getting ready to amp up the healing game

Hey Spoonies, If you’ve read my last post you know that I have been pretty busy. As a spoonie I try to keep the stress down and this year has been full of ups and down. I’ve dealt with multiple mental illness in my family, a death ( although I wasn’t really close to herContinue reading “Getting ready to amp up the healing game”

Allodynia- Skin sensitivity

Hello Spoonies, As I lay in bed I can feel the pressure on my skin. Every fleck of floating dust particles in the room that you see dancing in the sunlight. They touch my skin and make it burn. I feel like a heavy blanket has been laid over me covered in thousands of mitesContinue reading “Allodynia- Skin sensitivity”

They dont understand-a poem about chronic illness

This is a poem I wrote a while ago when I was having a really big flare. It was at a time when I didn’t talk much about my disease. I felt ashamed because most people didn’t understand how I could look so healthy and yet feel so horrible. I decided to share it willContinue reading “They dont understand-a poem about chronic illness”

What is Fibromyalgia?

What is it? Who is affects? What are some of the symptoms? I was diagnosed at the age of 23 after having my son. I am pretty sure that I’ve suffered with it longer than that. Growing up I always had this constant pressure in my shoulder blades. I had aches and pains and boutsContinue reading “What is Fibromyalgia?”