Allodynia- Skin sensitivity

Hello Spoonies, As I lay in bed I can feel the pressure on my skin. Every fleck of floating dust particles in the room that you see dancing in the sunlight. They touch my skin and make it burn. I feel like a heavy blanket has been laid over me covered in thousands of mitesContinue reading “Allodynia- Skin sensitivity”

They dont understand-a poem about chronic illness

This is a poem I wrote a while ago when I was having a really big flare. It was at a time when I didn’t talk much about my disease. I felt ashamed because most people didn’t understand how I could look so healthy and yet feel so horrible. I decided to share it willContinue reading “They dont understand-a poem about chronic illness”